Prince Frederik from LuxembourgPrince Robert’s son from Luxembourg and Princess Julie from Nassau, died at the age of 22.
Prince Robert shared news in a statement on the website for Polg Foundation, An organization that Frederik started to help treat and medicine for the disease.
Frederik was born with the disease of Polg Mitochondria, a rare genetic condition.
“With a very heavy heart, my wife and I would like to inform you of the passing of our son,” Prince Robert wrote in a statement, sharing that Frederik died on March 1.
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Prince Frederik, son of Prince Robert from Luxembourg and Princess Julie from Nassau, died at the age of 22 of the 22 years earlier this month from a rare genetic situation. (Grand Ducal Family Luxembourg/Pogl Foundation)
The day before “Rare Diseases” Day, Prince Robert shared that Frederik spoke with his family, including his brother Alexander and sister Charlotte, as well as relatives and other extended family, “last time.”
“After giving each of us with his forgiveness-somewhat, some wise, some instructive true Frederik mode, he collectively left us with a final long-standing family scarf. Even in the last moments, with his humor and boundless compassion, they forced him to leave us with the last laugh … to live us all.”
He also wrote that Frederik asked, “Dad, are you proud of me?”
“He could hardly speak for a few days, so the clarity of these words was as surprising as the weight of the moment was deep. The answer was very easy, and he heard it so many times, but at this point, he needed a belief that everything he might have been in his short and beautiful existence and that he wrote, his father.
Prince Robert called his son with his “superhero” in a statement announcing his death. (Grand Ducal Family Luxembourg/Pogl Foundation)
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The statement continued, “Frederik knows that my superhero, as our whole family, and so many good friends, and now in large part thanks to his polg foundations, so many people around the world. Part of his superpower was his ability to inspire and run an example.”
Prince Robert explained that Frederik was born with a half Mitochondria disease.
Frederika was not diagnosed until he was 14 years old, “when his symptoms turned out more clearly when his illness progressed became more acute.”
The disease causes “such a wide range of symptoms and affects so many different organ systems, it is very difficult to diagnose and no treatments are much less treatment. Polg disease is a genetic methochondrial disorder that robs the body cells of energy, in turn, causing a progressive number of multiple organs (brain, liver and that, muscles, muscles, muscles power. “
Prince Robert shared that Frederik was born with the disease of Polg Mitochondria, but was not diagnosed until he was 14 years old. (Grand Ducal Family Luxembourg/Pogl Foundation)
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Prince Robert said that Frederik “jumped” in the opportunity to create a foundation to find a cure.
“Although he always made it clear that he did not want to be defined by this terrible illness, he still immediately identified himself and helped define the mission of Polg Foundation.”
According to his father’s statement, Frederik Donna Karan.
He also “actively and literally gave himself to develop more models of mouse and cell lines in Switzerland, United States and Europe and to make them available to further facilitate polg exploration.”
Prince Frederik helped find the polg foundation, working on treatment and a cure for the disease. (Grand Ducal Family Luxembourg/Pogl Foundation)
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Prince Robert concluded: “On behalf of Frederik, Julie, Charlotte, Alexander, Mansour and the entire global polg community, we thank you for helping you in this valuable reasons that will Treat our son. We will be decisively focused on relieving suffering for the Polg Community and other diseases and conditions far beyond, associated with mitochondrial diseases. “
