Prince Frederik from Luxembourg dies from a rare genetic disease at 22 – National

Prince Frederik Luxembourg He died at the age of 22 of last month from a rare genetic disorder, his parents were confirmed by Prince Robert and Princess Julie over the weekend.
Young royal passed away on February 28 after a long battle with PolgGenetic mythochondrial disease that inhibits the body’s ability to produce energy and can lead to organ failure among other serious complications, including the decay of brain, nerve, liver, intestines, muscular and eye function.
In a statement published on the Polg Foundation website, a charity organization founded by the late prince, his parents said that Frederik fought “boldly to the very end. “
“His relentless lust for life has triggered him through the most difficult physical and mental challenges,” he continued, those that his family says he struggled with “grace” and “humor.”
Frederik was born with the disease, but he was diagnosed only in 14 years, when he developed into a more acute stage and the symptoms began to represent.
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There are 300 million people with Polg around the world, many of whom are not aware that they have a disorder, because it can be very difficult to diagnose. There is currently no treatment or treatment.
“It could be compared to a defective battery that is never fully full, in a constant state of exhaustion and eventually loses strength,” the statement explained.
Sir Douglas Turnbull, a professor and a member of the Scientific Advisory Board of Polg Foundation, cited Polg as the worst of all mitochondrial diseases.
“I kept an eye on literally hundreds of patients with a mitochondrial disease and there is little doubt that it is all mitochondrial diseases, the lack of polg is the worst. This is so relentlessly progressively progressively, attacking so many different systems with the same conclusion,” he said.
The statement also deserved Frederik’s mother for “work indefinitely” for 15 years to take care of her son and for her constant effort to instill in the global scientific community to create treatment for fatal illness.
“Behind this tireless work, his mother attended, organized an animated conference globally to encourage progression and cooperation in Polg research,” the statement said.
In three years since its establishment, Polg Foundation has funded four main projects in the total amount of $ 3.6 million, in turn, stimulating research activity on the field. He also united with medical organizations around the world to create tools for gathering data for drug development and clinical trials, and creates multiple films, including a series of cartoons, to educate and spread awareness of the disorder.
The family attributes to Fredrik for his ability to see “beauty in everything.” During his recent hospital stay, Frederik’s brother, Alexander, recalls his late brother to photograph the sunset through a small window in the hospital.
“Through a small window covered with a mesh, he saw the Eiffel Tower shining with his hour of light,” the statement said.
Similarly, she was written on her phone to find the notes that Frederik wrote to himself.
“Go outside when the sun shines,” one said.
“We will strive to follow his instructions, especially now that everything is felt a little colder and darker in his absence,” the statement concluded.
Frederika survives his brother Alexander, Sister Charlotte, and both parents.
& Copy 2025 Global News, Corus Enterinment Inc.