Teenagger in the UK wants to travel the world before blinding
The teenager hopes travel The more the world it can before it completely loses its sight.
Tilly Hayward, 17, is diagnosed with a rare genetic eye disease and will eventually blind, reported the SWWS news agency.
Stargardt’s disease is a genetic condition inherited. By influencing one of 10,000 people, it happens when the oily material accumulates on the macula, part of the retina is required for central vision.
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Most people with a state keep their peripheral visionso it will not completely lose sight. Still, last November, Hayward, from Peterboroug, England, learned that her peripheral vision had worsened and that she would blind.
“She put the news in the perspective that life was short,” she said.
Hayward said she didn’t know how much time she had before she lost her vision, and started raising funds to help her see the world.
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Said Hayward, “I was told to prepare for the worst and the blind gave me the motivation to see as many world as I can. From 4 or 5 years, I was Obsessed with beaches and planes. “
She always wanted to be a flight attendant, she said.
The teenager does not know how much time he has before he loses his vision.
Hayward was born with Stargardt’s illness, both her parents wear a gene, Swws reported.
The teenager said people noticed that there was a problem with her vision at the age of 4, but the optics recommended glasses.
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“When I was 7,” she said, “I started to run into things and sit crazy near the TV, but I still could read a and Normal Book of Font Size. “
She said she still remembered that the mathematics assistant said “Coordinates of the plot on the chart. [But] I didn’t know that a piece of paper had lines on it in front of me. “
She said her mother had returned her back to Ophthalmologist. Then the family was told that their child had “behavior problems,” Swws reported.
In the end, they were sent to two different hospitals.
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Hayward said she had endured many tests “to understand what’s going on. I was diagnosed with Stargardt’s disease when I was 9. I have no central vision, and my peripheral vision is like a spider.”
She said she had “some vision”, but that it was not “clear or normal”.
“If I don’t see people or waves on the beach, I’ll listen to her.”
Stargardt’s disease usually affects only the central vision, but scanning recorded in November 2024. She showed that it has spread to its peripheral vision, Hayward said.
She learned to read Braille, reported Swns, studied in the exams and accepted she would lose her eyesight.
Hayward said, “While I was 15 years old, I would never admit I was registered [as a] blind [person]. I was so uncomfortable. Now I grew up and associated with other people with similar conditions. I realized that you can still achieve amazing things. “
She attributed to her mother As always her “biggest champion”.
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“Me Went to Spain Last year, and it was simply amazing. I felt so happy there, but it was really hard. I remember leaving [vacation] Much when I was younger and could see so much more. “
“Just storing music would be amazing.”
Hayward said I “use what I can do now. If I don’t see people or waves on the beach, I’ll listen to her.”
Revealed that she had experienced “Really awful depression” Through her situation and struggled with anorexia for five years.
But today, “I realized I didn’t have to control or hide how I was feeling.”
She launched the Goofundme page to help her travel the world, and from the beginning of this week she has already raised £ 1,490 (almost $ 1,850 in US dollars) from a goal of £ 2K (almost $ 2,500).
She added, “My biggest dream since I was a little girl has been to go to Florida” and that she was a “big Disney fan”, which has always wanted to see Castle Cinderella.
“I accepted that this would not be the case, but even the care of music would be amazing.”
She also said, “I would also like Go to Dubai. I think it’s such a cool place with the beach and the city everything in one. “
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The teenager wrote on her funding page: “I wish I could see the sand under my feet for the last time, the palm trees were swinging in the wind, Crystal pure oceani And a smile on my family’s faces as we watch the sunsets on the evening set along the beach coast. “
Hayward said that if one receives a diagnosis or experience a loss of vision, “it can feel like the end of the world and has no future or hope. It takes time, but I have grown to realize that the disability should not disable you,” she said.
She continued, “You can learn to live with that and adapt. If I hadn’t gone through a loss of vision, I wouldn’t be the person I am now.”
Her supporter wrote on Facebook: “God bless you, don’t give up hope.”
Fox News Digital addressed Hayward family For comment.
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The National Eye Institute noted that he was with Stargardt’s illness, “[V]The ISion loss usually begins in childhood – but some people with Stargardt’s illness do not start losing their eyesight until they are adults. “
According to the same source, there is no treatment of a rare genetic disease, “but vision rehabilitation can help people make the most of their remaining vision.”
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Cleveland Clinic reports that Stargardt Disease has other names, including degeneration of the Stargardt macule, fundus flaveculatus and ABCA4 retinopathy, which refers to Genetic mutation diseases. Gene affects the way the body uses Vitamin A.